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fairmaidenwhite Joined: 27 Jan 2007 Posts: 10 Location: Texas	Posted: Sun Jan 28, 2007 12:27 am    Post subject: Ostrich! Thanks for being so kind and demonstrating a welcoming attitude toward me. I just wanted to take a moment and tell you how much I absolutely LOVE your signature! I saved the picture. Hope you don't mind. I like to think that your signature pertains to me. It's given me a sense of humour again and I like the way you think. Have a most blessed night and wonderful day! jmw _________________ "Tell me why this world is like a sunny place for shady people..."
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cultureslayer Joined: 07 Apr 2006 Posts: 1146 Location: NC	Posted: Sun Jan 28, 2007 12:30 am    Post subject: You don't have a car? Me either! It's still possible. You can order rice paper online or get it at a grocery store with an international section, you only need to buy a rice cooker once a decade, and I have found rice at every grocery store. I like the asian store for flours, but everything else you can pretty much find at the regular grocery store, although sometimes slightly more pricey. I like mung beans, but really any bean will do. Rice noodles keep forever, so when you find a super walmart that has them or do get to go near an asian store, stock up on them at $1 a lb or so. You can make cornbread gluten free with cornmeal and cornstarch, guar gum, and the regular ingredients. Just soak half the cornmeal in milk first so that the cornmeal texture won't be as pronounced as it would otherwise with the higher cornmeal content. Really, the diet in some third world countries is very low gluten (haven't studied it so I won't say gluten free) and more healthy than what most americans eat. Most of us would be better off for eating more rice and beans and less processed food, myself included. _________________ Lauren Pain is inevitable; suffering is optional.
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cultureslayer Joined: 07 Apr 2006 Posts: 1146 Location: NC	Posted: Sun Jan 28, 2007 1:00 am    Post subject: fairmaidenwhite wrote: Please see my earlier post on why it would do me no good to try and "treat" my disease at this point. Jumping to conclusions is a "shame," as well. You only die when you give up trying. I could write a book on this, but I have seen death. I have held animals for euthanasia, and you can just tell when they finally release. They give up trying. Usually they know what's happening and it's fairly early, but some are fighters. In medicine, sometimes the sicker patient will recover and the one with the more optimistic diagnosis will die. It's their will to live. I'm sorry to hear that you've lost yours. I have multiple autoimmune issues. It's tempting sometimes, but I just can't yet. I'm a fighter. I can't explain it. I was very upset that I'd lost 90% of my exercise capacity when I developed chronic fatigue, and my doctors told me to shut up and get out of their office because I could still bicycle maybe 10 miles a day, even if it took me several to recover. It took 2 psychologists telling them I was NOT depressed and it was not mental illness and one referring me to a specific doctor almost a year later to even start getting someone to listen. _________________ Lauren Pain is inevitable; suffering is optional.
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fairmaidenwhite Joined: 27 Jan 2007 Posts: 10 Location: Texas	Posted: Sun Jan 28, 2007 1:12 am    Post subject: cultureslayer wrote: fairmaidenwhite wrote: Please see my earlier post on why it would do me no good to try and "treat" my disease at this point. Jumping to conclusions is a "shame," as well. You only die when you give up trying. I could write a book on this, but I have seen death. I have held animals for euthanasia, and you can just tell when they finally release. They give up trying. Usually they know what's happening and it's fairly early, but some are fighters. In medicine, sometimes the sicker patient will recover and the one with the more optimistic diagnosis will die. It's their will to live. I'm sorry to hear that you've lost yours. I have multiple autoimmune issues. It's tempting sometimes, but I just can't yet. I'm a fighter. I can't explain it. I was very upset that I'd lost 90% of my exercise capacity when I developed chronic fatigue, and my doctors told me to shut up and get out of their office because I could still bicycle maybe 10 miles a day, even if it took me several to recover. It took 2 psychologists telling them I was NOT depressed and it was not mental illness and one referring me to a specific doctor almost a year later to even start getting someone to listen. Thanks for replying, hon. I know death, as well. I worked in health care and hospice for a decade and took sole care of my grandparents for the last 7 years of their lives. I also worked in a funeral home. What I've found is that sometimes the will to live isn't enough. It's the will of the Father who made you that's the final say. I like to think that even though my "will to live" is gone, that my "will to move on" is stronger than most people's. After a point, acceptance of your fate is a big thing. I know about the fatigue you have. I also know about a hundred of the selfsame ignorant doctors. Comeuppance happens in many forms and at many different times. The lack of decency and care they have shown us will come back to them in time. And while I wish I could see just a little of their comeuppance, ( ) just knowing that it will happen as a result of Karma (or whatever you want to call it) is satisfying enough. And I am envious of you. Mental illness runs rampant in our family, and there hasn't been a day in my life since I was a little girl that depression hasn't' made its mark on me. You've been blessed. Again, thanks for replying. _________________ "Tell me why this world is like a sunny place for shady people..."
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cultureslayer Joined: 07 Apr 2006 Posts: 1146 Location: NC	Posted: Sun Jan 28, 2007 1:39 am    Post subject: Oh, it is a depressing situation and I have an aunt in a mental health care center (not quite a hospital), but in this case my problems were not caused by depression. In fact, the problems were causing depression and the doc had it backwards. And treating the problem helped with the depression. I'm glad you can accept your situation. It's amazing that while euthanasia literally means "good death" we only focus on the chemical aspect as a society, instead of putting more effort into hospice and pain and mental health management for these patients. It's not something I think I am strong enough to deal with. Medical research here, and I just deal with cell lines. _________________ Lauren Pain is inevitable; suffering is optional.
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ostrich Joined: 30 Mar 2006 Posts: 5404 Location: Nebraska	Posted: Sun Jan 28, 2007 12:35 pm    Post subject: fairmaidenwhite wrote: Ostrich! Thanks for being so kind and demonstrating a welcoming attitude toward me. I just wanted to take a moment and tell you how much I absolutely LOVE your signature! I saved the picture. Hope you don't mind. I like to think that your signature pertains to me. It's given me a sense of humour again and I like the way you think. Have a most blessed night and wonderful day! Hey, anything to help! I didn't make up the sig, it's from those depression calendars that I love so much. It's important to have a sense of humor when it comes to these things (see Colleen's hillarious Mr. T sig). Otherwise the weight of it all just seems to come crashing down. If it helps, we're on a single income right now. My husband is working on his masters degree, so I pay all the bills. We have to be veeeery careful about how much we spend. So we're trying to think outside the box more as far as GF foods go. I still buy cereal and whatnot, but we're trying to get more veggies, fruits, ground beef, etc. _________________ Ostrich :>--O==={ Time falls away, but these small hours These little wonders still remain
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Fidissimus Joined: 17 Mar 2006 Posts: 2132 Location: Portland, OR.	Posted: Sun Jan 28, 2007 3:19 pm    Post subject: ostrich wrote: depression calendars Depression calendars? _________________ Cheers! Jenn GF BD: Feb. 2001 Free of wheat, barley, rye, oats, dairy, eggs, almonds, pineapple and brewers yeast. http://graindamaged.blogspot.com/
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ostrich Joined: 30 Mar 2006 Posts: 5404 Location: Nebraska	Posted: Sun Jan 28, 2007 6:21 pm    Post subject: Yeah, these guys. _________________ Ostrich :>--O==={ Time falls away, but these small hours These little wonders still remain
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~Flawed Design~ Joined: 05 Feb 2007 Posts: 30	Posted: Wed Feb 28, 2007 3:45 pm    Post subject: I found an interesting paper on Celiacs and periods. . . . I thought I'd post it here. http://www.celiac.com/st_prod.html?p_prodid=785&sid=2KAJFV1FE2kL5xg-00105103187.70 Oh and to add to this thread. . . I've had VERY wonky periods for the last 2 years or so, and occasionally before those 2 years I've had times when I wouldn't have my period for 3-4 months followed by a debilitating period from hell. And I have almost always had VERY low iron and B12. _________________ Suspected Celiac since 2-2-2007.
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Cee Joined: 06 Oct 2008 Posts: 4	Posted: Mon Oct 06, 2008 5:13 pm    Post subject: Hi, Firstly, I just wanted to say how happy I am to find this forum! I have been GF for 3 months or so now and my periods are getting all wonky. I skipped one entirely in September. My Doctor knows about it and doesn't think there is anything to worry about just yet. I guess I'm wondering if there is a connection to CD or if my cycle is just being funky? Today I'm extremely bloated so it could be on it's way or I could have been glutened, though I have no idea how. My hair also seems to be falling out. It's so much thiner than it used to be... my pony tail is like half the size! I have had my iron levels tested as well as my thyroid and am waiting for the results. Has anybody else had hair thinning? c
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cruelshoes Joined: 23 Sep 2005 Posts: 4059 Location: Washington State	Posted: Mon Oct 06, 2008 5:45 pm    Post subject: Cee wrote: Hi, Firstly, I just wanted to say how happy I am to find this forum! I have been GF for 3 months or so now and my periods are getting all wonky. I skipped one entirely in September. My Doctor knows about it and doesn't think there is anything to worry about just yet. I guess I'm wondering if there is a connection to CD or if my cycle is just being funky? Today I'm extremely bloated so it could be on it's way or I could have been glutened, though I have no idea how. My hair also seems to be falling out. It's so much thiner than it used to be... my pony tail is like half the size! I have had my iron levels tested as well as my thyroid and am waiting for the results. Has anybody else had hair thinning? c Here is a post on hair loss. I bumped it up for you as well. Here is a somewhat complete list of symptoms. Irregular menstrual cycle can be a symptom of untreated CD, but usually it resolves itself once gluten is removed from the diet. FWIW, pre-CD, my cycle was like clockwork every 2 weeks. In the last year before I was DX, I lost my period altogether due to malnutrition. Now that I am GF, my cycle is normal. If you want to investigate it further, I wouldn't limit yourself to only looking at celiac as a cause. there could be hormonal imbalances at play as well. **sigh** I noticed in this thread that I used to spend less than $200/month on groceries. Boy, those days are over. I'm up over $300 now. _________________ -Colleen Diagnosed 8/05 via bloodwork and biopsy 11-YO son diagnosed 11/05 via bloodwork and biopsy
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MilkyLadyGem Joined: 25 Sep 2011 Posts: 72 Location: Washington state.	Posted: Mon Sep 26, 2011 1:17 am    Post subject: [quote="fairmaidenwhite"] You do not know me. You do not know anything about my life. But with all the sicknesses I have had in my life (of which Celiac is just the tip of the iceberg. I am now dealing with Lupus and two different types of cancer, one of which will kill me within a year, even with all treatments available, and the other as a result of Celiac), I beg pardon if my own lackadaisical attitude regarding my own mortality offends the apparent sensitivities of those people who still have a zest for life. I am too old and tired to fight for my own existence anymore. What happens to me just happens. There are no "favors" to do for myself. As for what happens to my nephews after I am put in the dirt...I just want them to have the chance to grow up to not be as ill as I have been and still am. I merely want them to have [i]free choice[/i] in the way they live and to be able to get information on their conditions. They deserve to have a chance at peace and life and health, and that is why I asked.[/quote] i agree with you completely about having your own free will to do whatever you want and desire. more power to you. just wanna say that. i also want to say that i am sorry for what you are dealing with and i hope that you are able to talk to whoever you need to talk to to help. doesn't seem, dare i say, healthy to talk the way you're talking about what's going on. i'm not a doctor of any kind, and i mean no offense. back to the topic of this thread, i have had irregular menstrual cycles since i started by period 9 years ago. have my period one month, go a couple months without it...was never able to predict when it would come. then i went on birth control and it was regular! yay! but then i went on Asacol for my Crohns and started having spotting between periods. that didn't happen before the medication..it's happened a few times and just recently i started my period a whole week early. -while on birth control. i'll be seeing my gyno in November, hopefully it's nothing too serious? and maybe the gluten free diet will help....? but i still maintain it has something to do with the Asacol. everyone is different, and yet we are all somehow the same. _________________ ladies don't start fights, but they finish them.
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smalltownslackermom Joined: 04 May 2009 Posts: 720 Location: mid north american continent	Posted: Mon Sep 26, 2011 7:58 am    Post subject: MLG, Undiagnosed celiac disease definitely contributed to irregularities in my menstrual cycle, difficult PMS, ovarian cysts, and miscarriages - general problems with reproductive health. My OBGyn was about to check me for pre-mature ovarian failure a couple of years ago but then I decided to hold off since my family and I were figuring out the whole gluten-intolerance thing. After I went GF, my periods became regular again even though I was in my early 40's. I'm still doing pretty well at 47 even though the women in my family hit menopause at about 50. Excessive stress will still mess with my cycle a bit but all things considered, I can manage it better now. The GF diet may well help with your issues. _________________ son - high ttg - 4/09, pos. biopsy 5/09 self - negative bloodwork 5/09, pos. biopsy 11/09 sister - gf for ~3 years and is a new person niece - positive ttg 2/10, foregoing biopsy
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MilkyLadyGem Joined: 25 Sep 2011 Posts: 72 Location: Washington state.	Posted: Wed Sep 28, 2011 2:06 pm    Post subject: this gives me hope!!!! it's amazing all the little things that are caused by one thing. _________________ ladies don't start fights, but they finish them.
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