Miscarriages, Stillbirths and Premature Births?

NoahsWife · Joined: 11 May 2006 Posts: 183 Location: Missouri

I've read somewhere that fertility issues can stem from CD. It's now made me wonder if my 4 miscarriages, 2 stillbirths and our premature daughter born at six months could have all been prevented had I been diagnosed earlier in life. Any comments would be welcome. I guess it just made me angry when I realize what I may have lost due to this disease Crying or Very sad

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Never let your fears become the bounderies of your dreams!

mrsppmrxky · Joined: 09 Oct 2004 Posts: 1789 Location: GF Kitchen

Noahswife, my heart goes out to you for your loss!

From what I understand in regards to the fertility issue is that this disease prevents a woman from absorbing the folic acid and B vitamins that she needs to maintain the pregnacy. this is why if you are thinking of becoming pregnant, that you need to find out from your dr. what is a good amount for you to take daily.

When I hear of women that have had miscarriages, I always now tell them to check and see if this could be their problem.

I know for a fact, that it can cause early menapause and infertility.
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cruelshoes · Joined: 23 Sep 2005 Posts: 4059 Location: Washington State

Pre celiac diagnosis, I had 2 preemie babies. One born at 35 weeks with a placental abruption and one born at 36 weeks with 16 weeks of preterm labor/bedrest. Now in my post-diagnosis pregnancy, I am having an easier time of it, but still lots of preterm labor.

I think celiac may have a great deal to do with fertility problems. Our bodies are smarter than we think they are, and know when we are not healthy enough to carry a pregnancy. Probably not the whole answer to fertility problems, but a big part.

I am so sorry for your losses.....
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-Colleen

Diagnosed 8/05 via bloodwork and biopsy
11-YO son diagnosed 11/05 via bloodwork and biopsy

momto4 · Joined: 04 Jun 2006 Posts: 235

Bless you on your losses. Sometimes it is better not to think of the what ifs. I had miscarriages due to endometreosis and lots of infertility problems. Many ops and treatments have been gone into for my babies. I found I could go crazy over thinking it. I see from previous postings you are religious. I firmly believe that I will see my 'other babies' again and that it was going to be too hard a life for them if they were going to be here. My sisters baby is severley severely disabled and struggles through life and has endured so much pain and suffering in his short little life. (He does have some quality of life saying that though, he is adored by his Mommy and his Auntie!) I am trying to say, even though it is so painful you have to try and let yourself grieve for your babies and allow yourself to know you did all you could do.

NoahsWife · Joined: 11 May 2006 Posts: 183 Location: Missouri

Thanks for the words of encouragement. I don't normally dwell on the losses, but my niece just found out she is pregnant again, # 3, possibly and #4 and it brought back some memories. I'm blessed with what God has given me..We have two wonderful DD's and 6 grandkids...I can't complain! Cool

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Never let your fears become the bounderies of your dreams!

momto4 · Joined: 04 Jun 2006 Posts: 235

You have every right to your feelings. What you have been through is more than most could bare. You are allowed to have your feelings. I cant imagine nor pretend to even know what having a stillborn baby would do to me. I think you are amazing and I just wanted to let you know that even though I dont know the pain of what you have been through I my thoughts were with you.

SoIhaveAdisease · Joined: 30 May 2006 Posts: 174 Location: Central Alabama

Noahswife-

In no way do I claim to know what you're going through. I cannot imagine the pain you've had to live with for years wondering if it was Celiac's fault.

I too have seen your posts, and I hope this doesn't hurt you further. We live in a sinful world. Nobody said it was right or fair for good people to have to live through crappy things. I pray in the end of time that God will set everything to right, and I just know that He will! Smile

YOU COULDN'T PREVENT WHAT YOU HAD TO GO THROUGH- and though sometimes you may want to- you have to realise there had to be a purpose for it to happen. You have become such a strong person because of all the trials you've had to go through in your life! I'm REALLY proud of you for sticking it out and waiting for better things and times- and striving for better health!

When I was 16, 4 doctors told me I will never have any babies of my own. I firmly believe that it is directly related to celiac. But I've become a stronger person than I would have been. Ya' know?

I hope this isn't being to forward- is it ok with you if I pray for you when you come to mind?

Keep your chin up! You have a beautiful life- and a wonderful family to cherish! Smile

NoahsWife · Joined: 11 May 2006 Posts: 183 Location: Missouri

SIHAD -

Yes, you may pray for me at anytime. I know that God has a purpose for everything that we go through. I have become stronger and been able to counsel other who have been through similar experiences. I know that everything shapes our ministry and how we are used by God. Thank you for your kinds words and support.
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Never let your fears become the bounderies of your dreams!

momto4 · Joined: 04 Jun 2006 Posts: 235

SIAD Hi there. You know the docs that said you cant have babies. Dont believe a word of it. If you are missing your uterus thats the only time I would believe them. With the infertility problems etc I was told that I should have no children and was told after my 1st there would be no more. Because of my search I have spoken to and have many friends that were told no babies or no more babies. I can honestly say there is just 1 that never had children! All had been to many doctors that told them that it was impossible or there would be great problems conceiving etc. If you want children go for it and if you dont thats fine too. Good luck with either way Very Happy

MaryK · Joined: 13 Jul 2006 Posts: 66

Just wanted to add my experience to the post. I had 2 babies, who are now 6 and 3. I had a miscarriage last year (possible twins) and I just gave birth 3 months ago to a preemie. He was 4 weeks early. I'm also wondering if this is all related to CD.
I always had really heavy bleeding with my cycles, and they lasted for many days, then maybe after a couple of weeks it would start again. I actually had one cycle that lasted for 6 months Shocked

My Dr. put me on birth control to fix them. It seemed to work. I stayed on birth control for 15 years -mostly because I didn't want my cycles to go back to the way they were. When I stopped the pill, I got pregnant within about 2 months. I nursed my baby and didn't get my cycles back for 21 months. Then I got pregnant again while still nursing, and my cycles stayed away for another 17 months. Then was the miscarriage (while still nursing), and then this last pregnancy -again while still nursing.
I've always wondered if I hadn't gotten pregnant right after stopping the pill if my cycles would have returned to heavy and long, and I wouldn't have been able to get pregnant.
Well, maybe after this baby is weaned, and I've been GF for a couple of years ......hopefully my cycles will be somewhat normal. They were pretty normal while breastfeeding, although they were farther apart than normal.
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Mary (37) GFCF/dye free
DH-Paul (44)
Peter 2-28-00 Asperger's Syndrome GFCF/dye free
Adam 3-29-06 GFCF/dye free/sugar free
miscarried twins 3-26-05
Jonah 4-18-06 (4 weeks early) BF

Eeyorific · Joined: 13 Mar 2005 Posts: 814

smalltownslackermom · Posted: Mon May 11, 2009 8:41 am Post subject:

NoahsWife - I'm sorry for all your troubles and loss. I also had 4 miscarriages, a couple were pretty dramatic and traumatic.
I am quite certain that my undiagnosed CD was a major culprit. I am fortunate to now have one wonderful son. I took an 81mg aspirin every day and guiafenesin (sp? mucinex generic) in order to have him. I kept up with the half aspirin after the pg test was positive. I forget how long I took that. There are "directions" out there for this technique. It keeps inflammation down and helps to prevent your body from rejecting the growing egg as a foreign body.
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son - high ttg - 4/09, pos. biopsy 5/09
self - negative bloodwork 5/09, pos. biopsy 11/09
sister - gf for ~3 years and is a new person
niece - positive ttg 2/10, foregoing biopsy