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camelidae Joined: 24 Oct 2010 Posts: 8 Location: Chattanooga, TN	Posted: Mon Jan 03, 2011 9:46 pm    Post subject: Sensitivity to Sulfites? As a newly diagnosed Celiac (Aug 2010) I have found the more I pay attention to my body the more foods I find I react to. I think possibly because I have a better "feel good" baseline to campare things to. Most recently I am having trouble with alcohols. I have many food allergies and I have an allergy to hops so beer has always been out of the question, but I have always tolerated wine well untill recently. Occasionally Ill have a single glass of wine but am now finding I get an almost immediate headache and puffiness in the face that lasts for 24 hours or so. I also have head congestion, dizziness, and mild wheezing with even small amounts. It is not the same reaction I feel when "glutened". Much less severe but Ive narrowed it down to wine and GF hard ciders I used to be able to drink. Is sulfite sensitivity common or more likely in Celiac individuals or are these fairly normal reactions to those types of alchohol? Im not a drinker but feel limited in social situations already with such limitations Im afraid to add all alcohols to the list of "cant have"s. Any information would be appreciated. Thanks!
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mrsppmrxky Joined: 09 Oct 2004 Posts: 1789 Location: GF Kitchen	Posted: Mon Jan 03, 2011 10:32 pm    Post subject: Hello welcome to the board. I do not know if it is more common, but my husband has to have a very low salicylate diet. This is a very limiting diet for him because he has so many foods he tested positive to on the allergy testing. I do know that at our local Health Food store, they sell a Sulfite free wine. (I can not vouch for the taste, but I have seen it in the store.) With the wheezing and swelling of your face, I would strongly suggest that you become very careful in avoiding these foods and drinks. It sounds as if it could progress to a anaphylactic life threatening situation. If you need help with foods, I will be glad to tell you what I have learned. Tell us what foods you have to avoid and maybe we can come up with some suggestions for you. _________________
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Deb Joined: 23 Oct 2004 Posts: 683 Location: Long Island, New York	Posted: Tue Jan 04, 2011 8:20 am    Post subject: MrsPpmrxky, You should just start a thread with your finds for all of us. I would be very interested in what you have figured out. I have been spending years trying to figure me out. _________________ You can't discover new oceans unless you have the courage to lose sight of the shore!
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Flygal Joined: 01 Apr 2009 Posts: 466 Location: Wisconsin	Posted: Tue Jan 04, 2011 10:57 am    Post subject: I am one of those people who can't tolerate the sulfites in wine either. On a trip to Germany, I discovered that I could drink their wine. (They don't add sulfites!) Since then I buy the organic, no sulfites added, wine. I still have to limit my intake, as sulfites naturally occur in the fruit. I also have an issue with fructose, so I usually only drink 1/2 a glass of wine because of the grapes. BTW, welcome to the board. This has become my life line and second family. _________________ Judy
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mrsppmrxky Joined: 09 Oct 2004 Posts: 1789 Location: GF Kitchen	Posted: Tue Jan 04, 2011 4:31 pm    Post subject: I will try to pull my thoughts together on another time. I am having a bad fibro flare today and the brain fog to go along with it. I did do a google/swagbucks search for Salicylate info and there popped up a forum and lots of new pages I did not see when we started this journey. http://www.salicylatesensitivity.com/forum/ Is a place I was reading at into the wee hours this morning. Some info from the search pages conflicts the other pages you can find. On what foods are low or high. It is frustrating. I also think that it is sort of an individual level as well which makes it even harder. If you can ask a specific, it will help me answer better right now. I will just be scattered if I have to wing it............as you can tell by this post. _________________
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camelidae Joined: 24 Oct 2010 Posts: 8 Location: Chattanooga, TN	Posted: Tue Jan 04, 2011 6:50 pm    Post subject: Thanks All! Thanks all for the replies and support! I will definately look for an organic sulfite free wine. I didnt know it existed. I would like to know more about this diet discussed. My main allergies are .. shellfish, fish, sweet potatoes, coffee, hops, Im sure im forgetting some...I have many many sensitivites to other foods I ignore and eat them anyway because my reactions are mild. (lettuce, broccoli, peppers, citrus, watermelon, chocolate, mushrooms, almost all spices, etc.etc.) I dont eat any meat (a decision I made when I was a stubborn child and I just stuck with it) I do respond rather violently when animal prodcts are accidentally consumed at this point. I do eat very little dairy. When I do eat dairy I tolerate cheeses and yogurt okay. I would like to find an allergist for guidance and more info but have not so great health insurance at this time. Thanks Again
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mrsppmrxky Joined: 09 Oct 2004 Posts: 1789 Location: GF Kitchen	Posted: Tue Jan 04, 2011 8:46 pm    Post subject: Re: Thanks All! camelidae wrote: Thanks all for the replies and support! I will definately look for an organic sulfite free wine. I didnt know it existed. I would like to know more about this diet discussed. My main allergies are .. shellfish, fish, sweet potatoes, coffee, hops, Im sure im forgetting some...I have many many sensitivites to other foods I ignore and eat them anyway because my reactions are mild. (lettuce, broccoli, peppers, citrus, watermelon, chocolate, mushrooms, almost all spices, etc.etc.) I dont eat any meat (a decision I made when I was a stubborn child and I just stuck with it) I do respond rather violently when animal prodcts are accidentally consumed at this point. I do eat very little dairy. When I do eat dairy I tolerate cheeses and yogurt okay. I would like to find an allergist for guidance and more info but have not so great health insurance at this time. Thanks Again Well, most of the foods you listed as having trouble with them, are moderate to high in salicylates. MrP can eat potato, but if you give him sweet potato, his about to come out of his body with muscle twitches, itching stomach burning. Coffee does not bother him if it has no flavors added to the grinds. We did however have to switch to a permanent metal filter because the paper ones have chemicals and often are made from corn. (He can also drink hot tea if it is not in a bag.........due to the paper again.) Many of the fruits are high in salicylates. So far, MrP can eat Asian Pears, Banana, figs, and dates. (If I can remember any more, I will list them, but that is pretty much it.) Veggies: White potato, cabbage, 2 spears of asparagus at a setting, carrots, celery, a few Brussel Sprouts, and just recently for New Year, he was able to eat 2 servings of cooked dried Navy beans. He can not have citrus at all. We put less than 1/4 teaspoon of combined, spices marjoram, rosemary, oregano on an entire chicken that is baked. We use only non iodized sea salt. He can use Maple syrup without incident. (I use that in the chicken/cabbage stir fry dish in the place of soy sauce.) We avoid soy sauce or miso as it is too concentrated and the sauce contains corn. He tolerates cheddar cheese if it does not have the added mold retarding preservatives added. We use only real butter, grapeseed oil, canola oil, to cook with. I also get whole milk that is as close to raw as possible. ($7 a gallon) He can oddly enough have Starbucks coffee and the vanilla bean ice cream......it is basic ingredients. He can also have a few of the Ben & Jerry's and 2 of the Hagen Daus ice creams if they only have milk, egg and sugar along with either vanilla or cocoa or coffee. That pretty much is what his diet consists of except for me mentioning RICE. We have rice or potato with nearly all meals. _________________
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camelidae Joined: 24 Oct 2010 Posts: 8 Location: Chattanooga, TN	Posted: Tue Jan 04, 2011 10:48 pm    Post subject: Thank You Thank You this is great helpful information!
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mrsppmrxky Joined: 09 Oct 2004 Posts: 1789 Location: GF Kitchen	Posted: Wed Jan 05, 2011 12:39 am    Post subject: All of MrP's medications have to be compounded by a compounding pharmacist. This is very complicated because some medications that he really needs, are still under patent and they are not allowed to compound them leaving out what he can not have. He has to avoid epsom salts and his personal care products have to be very basic. We still have yet to find a toothpaste that is also cornfree. When I was doing my google search for you, there was a site that came up with makeup and body care products that are supposed to be salicylate free. _________________
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Deb Joined: 23 Oct 2004 Posts: 683 Location: Long Island, New York	Posted: Wed Jan 05, 2011 7:04 am    Post subject: Some great info there. I love sweet potatoes, but just can't seem to eat them and just maybe you have hit on the reason for me too. He's lucky to be able to eat potatoes, I can't eat any nightshades or cruciferous veggies. I too try to stay away from corn products. I use Gleem toothpaste...I know, not many people remember it. We always used it, and I search for it, when I find it, I buy all I can afford. I found it in Michigan on vacation, came home with 12 tubes of it! It can be found online too. I do not believe it contains corn, and for candida sufferers, it does not contain sugar. I read somewhere yesterday that we must be careful with sea salt. They say anyone can label salt as sea salt, and the best sea salt is not white. The Himalayan Pink Sea Salt is suppose to be the best. My sea salt is white! Dairy is out for me too. I have been wanting to try and make my own almond yogurt, but still must find some non dairy yogurt starter cultures. Does anyone know how to make yogurt without cultures? _________________ You can't discover new oceans unless you have the courage to lose sight of the shore!
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mrsppmrxky Joined: 09 Oct 2004 Posts: 1789 Location: GF Kitchen	Posted: Wed Jan 05, 2011 7:16 pm    Post subject: Deb, thanks for the info on Gleem. (Yes, I am old enough to remember it. LOL) I will have to look for it. I just did a swagbucks search and found a site with a recipe for the almond yogurt and it had a link for dairy free starter. here are the links http://www.giprohealth.com/search.aspx?find=yogurt+start It is a little steep in price, but hey, once you do get your yogurt started, you can hold some it back for the next batch of yogurt you make. (at least that is what I do with making my own yogurt with milk.) http://www.pecanbread.com/recipes/almondyogurt.html the recipe http://www.alive.com/2493a7a2.php another recipe for the yogurt. _________________
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mrsppmrxky Joined: 09 Oct 2004 Posts: 1789 Location: GF Kitchen	Posted: Wed Jan 05, 2011 7:42 pm    Post subject: Maybe I am missing something, but looking at Gleem ingredients at this site http://www.goodguide.com/products/136598-gleem-sodium-fluoride-anticavity-toothpaste It has corn and sulfates in it. Does it have these on you package? _________________
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Deb Joined: 23 Oct 2004 Posts: 683 Location: Long Island, New York	Posted: Wed Jan 05, 2011 8:40 pm    Post subject: I have no box any longer, but the tube only says : CONTAINS NO SUGAR....ACTIVE INGREDS: SODIUM FLOURIDE. That's it. Sorry I gave you a useless lead! Thanks for the links for me though, going to look them over now! _________________ You can't discover new oceans unless you have the courage to lose sight of the shore!
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mrsppmrxky Joined: 09 Oct 2004 Posts: 1789 Location: GF Kitchen	Posted: Wed Jan 05, 2011 8:59 pm    Post subject: Hey, no problem Deb. The sorbitol and the Sodium lauryl sulfate trip me up all the time on all the brands....if I find one without one of those, it has a mint thrown in and that also causes us to have to bypass it. Sometimes I think, hey, this would be a wonderful idea for a new product. LOL If only my ideas could turn into $$$. LOL _________________
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celiacmaine-iac Joined: 19 Dec 2007 Posts: 2131 Location: Maine	Posted: Thu Jan 06, 2011 10:53 am    Post subject: Mrs P- Have you looked into Tom's of Maine products? They have a children's toothpaste that is free of corn based ingredients, and isn't mint flavored. I don't know if some of the fruit-based natural flavor would present a problem for you or not. They also have a section on their website that lists all the ingredients the company uses and the source for each ingredient. And just to be clear, I have no affiliation at all with Tom's of Maine. _________________ Steph
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