Home   FAQ   Search   Memberlist   Usergroups    Register   Profile   Log in to check your private messages   Log in

glutenfree.com - Celiac Disease Forums - Forum Index -> Diagnostic & Technical Info

View previous topic :: View next topic
Author	Message
aklap Joined: 02 Oct 2004 Posts: 12468 Location: WI, USA	Posted: Fri Jan 13, 2012 8:33 am    Post subject: Delay in CD diagnosis and health-related quality of life Delay to celiac disease diagnosis and its implications for health-related quality of life http://www.biomedcentral.com/1471-230X/11/118/abstract Quote: BMC Gastroenterology 2011, 11:118 doi:10.1186/1471-230X-11-118 Published: 7 November 2011 Abstract Background To determine how the delay in diagnosing celiac disease (CD) has developed during recent decades and how this affects the burden of disease in terms of health-related quality of life (HRQoL), and also to consider differences with respect to sex and age. Methods In collaboration with the Swedish Society for Coeliacs, a questionnaire was sent to 1,560 randomly selected members, divided in equal-sized age- and sex strata, and 1,031 (66%) responded. HRQoL was measured with the EQ-5D descriptive system and was then translated to quality-adjusted life year (QALY) scores. A general population survey was used as comparison. Results The mean delay to diagnosis from the first symptoms was 9.7 years, and from the first doctor visit it was 5.8 years. The delay has been reduced over time for some age groups, but is still quite long. The mean QALY score during the year prior to initiated treatment was 0.66; it improved after diagnosis and treatment to 0.86, and was then better than that of a general population (0.79). Conclusions The delay from first symptoms to CD diagnosis is unacceptably long for many persons. Untreated CD results in poor HRQoL, which improves to the level of the general population if diagnosed and treated. By shortening the diagnostic delay it is possible to reduce this unnecessary burden of disease. Increased awareness of CD as a common health problem is needed, and active case finding should be intensified. Mass screening for CD might be an option in the future. http://www.celiac.com/articles/22772/1/How-Does-Delaying-Diagnosis-Impact-People-with-Celiac-Disease/Page1.html Quote: Celiac.com 01/11/2012 - In an effort to understand how delayed celiac disease diagnosis became the norm for most patients over the last few decades, a research team conducted a study to assess the issue. Their study also looked at how delayed diagnosis affects health-related quality of life (HRQoL) for those with celiac disease, and considered differences with respect to sex and age. _________________ Al “We cannot all do great things, but we can do small things with great love.” Mother Teresa
Back to top
smalltownslackermom Joined: 04 May 2009 Posts: 694 Location: mid north american continent	Posted: Fri Jan 13, 2012 9:01 am    Post subject: 9.7 Years?!?!?! & that's in Sweden which has higher aawareness, no? ugh, no wonder it was decades for my niece, sister and I. _________________ son - high ttg - 4/09, pos. biopsy 5/09 self - negative bloodwork 5/09, pos. biopsy 11/09 sister - gf for ~3 years and is a new person niece - positive ttg 2/10, foregoing biopsy
Back to top
aklap Joined: 02 Oct 2004 Posts: 12468 Location: WI, USA	Posted: Fri Jan 13, 2012 9:25 am    Post subject: Yup - however that was from first symptom onset. 5.8 years after the first doctor visit. _________________ Al “We cannot all do great things, but we can do small things with great love.” Mother Teresa
Back to top
Display posts from previous: All Posts1 Day7 Days2 Weeks1 Month3 Months6 Months1 Year Oldest FirstNewest First

	glutenfree.com - Celiac Disease Forums - Forum Index -> Diagnostic & Technical Info	All times are GMT - 5 Hours
Page 1 of 1

forums.glutenfree.com is graciously sponsored by: