a sixteen year old with undiagnosed neurological problems

M. Shac · Joined: 23 Oct 2005 Posts: 90

A year ago,our pastor's daughter started having problems with eye control, not being able to walk unassisted and now is in a wheel chair. She is weak and tired and at times seems a little better and then she gets worse again. I do not know if she has digestive problems. Her parents have taken her to Mayo clinic, consulted with numerous doctors and had spinal taps, MRIS, PET scans, X-RAYs, blood tests, infusion treatments, ect. There is no evidence of a brain tumor, MS, and other known autoimmune diseases. They have said that it is a autoimmune disease, they just do not have a name for it.

Could these symptoms be associated with Celiac disease? Please help if you know anything about these symptoms. The family is doing everything they know to do to get her help. A year ago at Christmas time she was singing and dancing and well and then on Christmas night, these symptoms hit her and she has not been the same since.

Any help would be appreciated?

aklap · Joined: 02 Oct 2004 Posts: 12530 Location: WI, USA

How sad...and frightening!

Have they tried going GF? It certainly can't hurt. What have they got to loose?

Gluten can be the root cause of neurological problems.
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

MilkyLadyGem · Joined: 25 Sep 2011 Posts: 72 Location: Washington state.

wow that is heartbreaking! and, as Al said, frightening. it's crazy how things can affect the body and cause change so quickly and suddenly....let us know how she's doing!!
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ladies don't start fights, but they finish them.

aklap · Joined: 02 Oct 2004 Posts: 12530 Location: WI, USA

Oh - have they checked her B12 levels? B12 def. presents with a wide variety of neuro symptoms.

http://sites.google.com/site/jccglutenfree/b12deficiency
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa