gluten

samessier · Guest

mydoctor is trying to rule out CD. I just went for a small intestine biopsy and the results will not be in for another three days.

I have all the symptoms for CD, plus I am at high risk for Colon cancer. I am concerned that I may be eating the wrong foods and I do not know where to search for additional information on diets, etc.

I am overweight, all my life, so I do not think this has been around forever, but it just recently surfaced.

I hope someone can offer some insight

WheatFreePDX · Joined: 29 Mar 2005 Posts: 91 Location: Portland, OR

Hi there! Did your doc screen you with the Celiac panel blood test 1st? What were the results? Many adults diagnosed with Celiac are overweight...

Now that I'm gluten free I'm hoping to lose 20 pounds!
_________________
Diagnosed with celiac disease (bloodwork & biopsy). GF (again in my adult life) since March 2005.

aklap · Joined: 02 Oct 2004 Posts: 12530 Location: WI, USA

Hi Sam,

I agree with WFPDX Smile

Weight is not always a good symptom to diagnose celiac. I have a friend that is probably considered overweight - he was recently diagnosed.

It is strange that the doc would go right to the biopsy. Usually they do a Celiac Panel. If that is positive, then they'll head for the intestines.

Even if your tests come back negative - please keep in mind that you may be Gluten Sensitive as opposed to Celiac. Currently most of the medical community does not recognize GS. They will only recognize and diagnose CD. CD is part of the whole Gluten Sensitivity spectrum. CD happens to be End Stage for GS. If you notice you feel better on a GF diet - you might consider listening to your body and remain that way - regardless of what the docs say. People go on diets for all sorts of reasons...why not go on one that makes you feel like living??

If you search around here, I think you'll find enough info to get you on the right path. Look in the Proper Foods Forum. There's lots there!!

Good luck in your quest for health and knowledge!
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

tj from spokane · Guest

Say Al:

You are quite knowledgable about the CD/GI subject matter. I remember reading that you are Gluten Intolerant. I had a Celiac Blood test. It came back negative, But my Food allergy test came back maxed out on Wheat, gluten, & gliaten & almost max'd on soy & a little on eggs. I have been lactose intolerant also. I year ago I had a routine colonoscopy & endo, the colonoscopy came back fine, but the endo came back with barrets esophoagus. I have had some problems with gerd but did not know it was as bad as that. The doc of course gave me a two page flyer about gerd & sent me home with a priscription for some PPI's "nexium etc. I was a allergic to all of them, so I took xantac for 2 months. I was not satisfied with what the doc said, I wanted to know why I had barrets esophagus, when my gerd wasn't that bad. I then went to a integrative MD who gave me the usual blood test & test for candida. Every thing is fine with that, although I was Hyperthyroid for a short period of time and it seemed to resolve it self. I was negative for candida, although my RD Registered Dietician did put me on a candida cleanse and I did not have any die off with it. So I don't know if I have candida or not, or if I should try another candida product. The gerd seems to be better. I have been GF for only about 6 months & still working on it. I did challenge wheat & gluten about a month ago, with some bread. It took about 3 to 4 days and I had Gerd again for 3 weeks. Then it seemed to level off. I have been on probiotics & digestive enzymes for about 5 months. Also been using aloe vera juice to sooth the tummy. Well, anyway all I am a little frustrated here lately the gerd seems to come & go. I was looking for some advice from you. Does it take awhile to get stabalized? Or do you think I developed some other food intolerance. I use alot of brown rice & corn products. I figured If I was off the gluten etc. The acid reflux stuff should be gone by now. I also take prevails, acid ease for the reflux, i really don't want to get into the heavy duty stuff again like xantac etc. lo ng term use of these products is bad for the body I belive. I will be going back this year for a endo, I thought I would have them check the villi & biopsy. Do you have any advice for me. Thanks alot Al

aklap · Joined: 02 Oct 2004 Posts: 12530 Location: WI, USA

tj · Guest

Al:
I just have a copy of the food allergy test. It is labeled as IgG & IgE or a delayed onset hypersensitivity reaction or an Immediated onset reaction. The IgG or delayed reaction was to a High level (Max'd Out) for Wheat, gliaden & Wheat Glutet, spelt, rye & for Whole wheat. The IgE or immediate reaction was low on all of them. I also had a high IgG for Soy, EggWhite & Yolk & Kidney Beans. (Oh, great just had some soup with Kidney beans in it, I forgot, Oh, well see what happens) I had a high IgG to Banana's also. I find that if I rotate Eggs & don't eat them too much. I seem to be OK. The doc did a blood test specifically for celiac Disease. I can't seem to find the paper work on that. I will go to the Doc & see If I can get a copy. That excerpt about Barret's & CD was interesting fits right into where I was at. I did'nt present with major symptons but did have barrett's. Luckily, the barrett's was at real low level. So they caught it in time. Like you & the Colonoscopy, & the polyp . We were able to catch things before they got out of hand. Our conditions really mirror each other it seems. I see on your profile you play guitar.. I play geetar....does anybody know the difference between a geetar....& guitar..... Hmmmm....Hmmmm....Welll...$300.00. I play the geetar. thanks for the info on all that, very useful. Oh, by the way I could not take any of the PPI's ex. aciphex, nexium...I was allergic to them. I guess I will go Out and buy some of the OC Xantax 150 mg stuff. for those special occasions...right! again thanks TJ

jake from mass · Guest

Hey tj

I also had the IgG testing done since I have this rash on my arms and legs. The allergy test showed very high reaction to gluten, wheat, rye, malt, and barley. A few other things too were moderate & low reactions (dairy). I got the allergist to do the celiac panel and am waiting for results. Still waiting for the results....

i figure at least I am somewhat sensitive to gluten... if it is only delayed allergy it may clear up if i avoid it for a while... but howlong?

I have no intestinal symptoms. Just the funny (ITCHY rash), dental enamel issues, some emotional stuff (mood swings,irritability).

Let me know what happens with you.
jake

aklap · Joined: 02 Oct 2004 Posts: 12530 Location: WI, USA

maria1223 · Guest

I just had a food allergy test done 3 days ago . It came up clean for everything. I don't see how that is possiable when all my blood test, endo & colon osc. where postive for cd. I also have have to drink soy milk. have really bad gerd the GI Dr. put me on zantac 3 times a day. That did not work. he put me on prilosec 2 times a day. It really doesn't work. It got so bad that I changed GI Dr. & cancer Dr's I think that my old ones just wanted the money & not treat me right ( DX ). These Dr's should go back to school & learn more About CD. I can't eat alot of red sauces. Or sodas. U have to be very careful what these Dr's give u ur body will let u know what is right for u & what isn't

celiac_jackie · Guest

[quote="maria1223"]I just had a food allergy test done 3 days ago . It came up clean for everything. I don't see how that is possiable when all my blood test, endo & colon osc. where postive for cd [quote= "maria1223"]

That's because Celiac is not an allergy. Why would it show you're allergic when you're not? You have a disease, not an allergy.

-Jackie