i got my enterolab results!!

caseygirl · Joined: 26 Jun 2008 Posts: 33 Location: Baltimore

i'm excited i got them back! they confirm what i always thought...i do have one of the main celiac genes and i am gluten intolerant. (don't know if i have celiac or just gluten intolerant...is there a way to tell by these results?) now i don't feel crazy! haha. do you guys totally trust them and their results? i mean, regardless, i've been GF for 2 1/2 months and feel great so i'm not going to go back to eating gluten, but just curious what you all think of them.

here is a copy of my results. i guess i'm soy intolerant too Sad

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value
Fecal Antigliadin IgA 63 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 34 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 403 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 24 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0302

HLA-DQB1 Molecular analysis, Allele 2 0503

Serologic equivalent: HLA-DQ 3,1 (Subtype 8,5)

Soy Sensitivity Stool Test
Fecal Anti-Soy IgA 40 Units (Normal Range <10 Units)

Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity. For optimal health, resolution of symptoms (if you have them), and prevention of small intestinal damage and malnutrition, osteoporosis, and damage to other tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands, skin, liver, spleen, among others), it is recommended that you follow a strict and permanent gluten free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well.

Interpretation of Fecal Antitissue Transglutaminase IgA: You have an autoimmune reaction to the human enzyme tissue transglutaminase, secondary to dietary gluten sensitivity.
does this mean i have celiac or no?

soutram · Joined: 02 May 2008 Posts: 34 Location: Montreal, Quebec

Hi, I also sent my samples in recently, do you know how long it took you to get the results. I am waiting impatiently to find out whether I am crazy or not. I am so happy for you that you were able to confirm what your body has been telling you.
_________________
Sue
Gluten free, and working on becoming Casein free

caseygirl · Joined: 26 Jun 2008 Posts: 33 Location: Baltimore

my results took about 2 1/2 weeks. they got it 2 thursdays ago and i just got the results today (monday).

good luck with everything...i know how frustrating it is!

The Edifying Conscience · Joined: 29 Aug 2005 Posts: 2424

Enterlob doesn't test for CD. It only tests for gluten sensitivity.

As far as totally trusting them. No. The last time I checked Dr. Fine still had not published any of his findings, methods, etc. So, no, I wouldn't trust him. Having said that there are others who do trust him.

aklap · Joined: 02 Oct 2004 Posts: 8506 Location: WI, USA

If you'd like to read a bit more about Dr. Fine's tests - check out Diagnosing Celiac Disease and Gluten Sensitivity by Dr. Scot Lewey. He discusses Dr. Fine's testing.

Do you have CD? Maybe
Do you have Gluten Sensitivity? Sure looks like gluten and dairy are not your friends.

Dr. Fine's staff is very good about answering your questions. You might email them and ask the question specifically and see what they say.

All CD is gluten sensitivity, but all gluten sensitivity is not CD.

Celiac Disease is medically defined by villous atrophy [this is a very basic description]. Some docs feel it's CD [villi damage] or bust. If you don't have villi damage - you don't have CD [and thus no problems with gluten].

However there are some docs [Dr. Lewey is one of them] that acknowledge a gluten sensitivity spectrum. This means there is a range of gluten sensitivity issues in which CD is just part of that spectrum.

You might want to check out Dr. Lewey's Celiac Disease Genetics.
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

forinajoy · Joined: 01 Aug 2006 Posts: 201 Location: Texas

I trust the results.....when I suspected CD in one of my children I started by having them both tested through enterolab, b/c it is noninvasive. One of them was gluten intolerant and casein intolerant and one of them was negative on everything. I then took them to a Pediatrician to have both of them tested with a blood test and enterolab test results matched blood test results...which was followed by a confirmed diagnosis of CD for Ina....I would highly recommend going completely casein free also, b/c I think it will make a HUGE difference in how you feel......if we had not used enterolab we would not have known about the casein intolerance b/c the other methods did not test for this
_________________
Connie, mom to Ina, 13 y/o with CD

nancw · Joined: 04 Oct 2006 Posts: 831 Location: Denver, CO

Did you notice your casein is also high? I mention this because my doc completely missed high readings in my allergy testing indicating dairy is a problem for me, and didn't make a recommendation to cut it out of my diet. When I got copies of my results I knew I had to cut it out and I did, a year ago.

I don't know how to interpret Enterolab testing - just thought I would mention it since you did not.
_________________
Nance

gluten, dairy, soy, rice, yeast and 99% grain-free

caseygirl · Joined: 26 Jun 2008 Posts: 33 Location: Baltimore

nancw -- thanks, I did notice that the casein was elevated. I always thought dairy affected me, but I was more surprised by the soy. That's the reason I mentioned the soy, in addition to gluten.

Wow, I can't even imagine how hard it is to be intolerant to so many foods. How do you do it? I see you're intolerant to many many things! What do you eat? I'm finding that lots of processed gluten free foods contain soy, which I seem to be sensitive to (at least if the results from enterolab are accurate). I think it's going to be hard enough just looking for gluten, soy, casein free. I admire you, as it must be absolutely frustrating some days.

Al, thanks for the links. I think I will email Dr. Fine and see what he says about my results. I definitely understand that in order to be diagnosed as celiac, you have to have villi damage. My results from enterolab do seem to be consistent with my endoscopy which showed "mild blunting of the villi". My numbers from enterolab indicate that I have mild damage/malabsorption. Jeez, I'm very lucky to have caught this in its early stage, whether it be gluten intolerance or celiac. Thanks for your replies!

nancw · Joined: 04 Oct 2006 Posts: 831 Location: Denver, CO