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Question about wheat intolerance and gluten intolerance

 
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lotsaquestions



Joined: 18 Sep 2007
Posts: 29

PostPosted: Mon Sep 24, 2007 7:29 am    Post subject: Question about wheat intolerance and gluten intolerance Reply with quote

Sorry if this is posted in the wrong category...I didn't know where to put it.

Okay, first...I don't remember if gluten intolerance is the same thing technically as celiac...I'm thinking I'm remembering it is not the same exact thing, but the treatment is so my mind has lumped them as one.

So now I'm wondering how do you know if you have "just" a wheat intolerance? Does any of the testing find this? Or is that a trial and error kind of thing?

Thanks!
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cruelshoes



Joined: 23 Sep 2005
Posts: 2679
Location: Washington State

PostPosted: Mon Sep 24, 2007 7:50 am    Post subject: Re: Question about wheat intolerance and gluten intolerance Reply with quote

lotsaquestions wrote:
Okay, first...I don't remember if gluten intolerance is the same thing technically as celiac...I'm thinking I'm remembering it is not the same exact thing, but the treatment is so my mind has lumped them as one.


All celiacs are gluten intollerant, but not all gluten intollernant people have celiac. Celiac disease is charcterized by damage to the villi. People with non-CD gluten sensitivity will have symptoms, but not damaged villi. The treatment is the same - a GF diet.

Quote:
So now I'm wondering how do you know if you have "just" a wheat intolerance? Does any of the testing find this? Or is that a trial and error kind of thing?


It is possible to be intollerant to wheat, but that is not CD. One could also have a wheat allergy and not react to other gluten grains. That is also not the same as CD, however, as celiac is an intollerance and not an allergy. If the CD tests are negative, an elimination diet may be indicated to determine what the offending foods are. I would only embark on something like this AFTER completing the CD testing, however. Best not to muddy the waters by eliminating foods before doing the testing.

Clear as mud?
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Dx 8/05 via bloodwork/biopsy
10-YO son Dx 11/05 via bloodwork/biopsy
Daughters (12 and 2) have neg. bloodwork

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lotsaquestions



Joined: 18 Sep 2007
Posts: 29

PostPosted: Mon Sep 24, 2007 8:00 am    Post subject: Re: Question about wheat intolerance and gluten intolerance Reply with quote

cruelshoes wrote:


Clear as mud?


Yup! Wink

Quote:
If the CD tests are negative, an elimination diet may be indicated to determine what the offending foods are.


So, I'm assuming that none of the bloodwork for celiac tells you about wheat only, huh? Guess I was hoping it would!
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cruelshoes



Joined: 23 Sep 2005
Posts: 2679
Location: Washington State

PostPosted: Mon Sep 24, 2007 8:22 am    Post subject: Re: Question about wheat intolerance and gluten intolerance Reply with quote

lotsaquestions wrote:
So, I'm assuming that none of the bloodwork for celiac tells you about wheat only, huh? Guess I was hoping it would!


Gluten is a general term for the proteins that are present in grain. Celiacs react to similar proteins that are present in several types of grains. These are: gliadin in wheat, horedin in barley, and secalin in rye. None of the CD bloodwork is specific to wheat as celiacs react to barley and rye also. There are other types of testing for wheat intolerance (allergy testing, for example) but that is not celiac.

Does this help?
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-Colleen
Dx 8/05 via bloodwork/biopsy
10-YO son Dx 11/05 via bloodwork/biopsy
Daughters (12 and 2) have neg. bloodwork

A woman is like a tea bag-you never know how strong she is until she gets in hot water. - Eleanor Roosevelt
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NorthernElf



Joined: 14 Aug 2006
Posts: 213
Location: British Columbia, Canada

PostPosted: Mon Sep 24, 2007 9:15 am    Post subject: Reply with quote

When I was first figuring this out, I was hoping it was just wheat. I remember it was after Thanksgiving - I made a turkey barley soup...had some for lunch and then went for a walk with my daughter....

Stomach cramps and ill feeling half way into the walk.

That was my gluten test !
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lotsaquestions



Joined: 18 Sep 2007
Posts: 29

PostPosted: Mon Sep 24, 2007 3:10 pm    Post subject: Re: Question about wheat intolerance and gluten intolerance Reply with quote

cruelshoes wrote:

Gluten is a general term for the proteins that are present in grain. Celiacs react to similar proteins that are present in several types of grains. These are: gliadin in wheat, horedin in barley, and secalin in rye. None of the CD bloodwork is specific to wheat as celiacs react to barley and rye also. There are other types of testing for wheat intolerance (allergy testing, for example) but that is not celiac.

Does this help?


Yes, thank you. So, if I'm understanding correctly, I would check for CD first, if all that is negative, then perhaps test for a wheat intolerance. Or try the hard way - the way I'm trying to avoid - and eliminate from my diet to find out. I'm okay with the whole diet/lifestyle change IF I know I must. But to change everything to just find out...well, I'd need a whole lot of motivation and support for that!
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ostrich



Joined: 30 Mar 2006
Posts: 4285
Location: Nebraska

PostPosted: Tue Sep 25, 2007 6:39 am    Post subject: Reply with quote

Yup, you got it Lotsa! Just remember to stay on a normal diet if you're going to get tested for CD. If you don't care about testing you can start the GF diet any time.
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